Kourageous Kids (Hosparus for kids) Hosparus can be a scary word but don’t be afraid to call them. They do both palliative care (specialized medical care for people with serious or life-threatening illnesses) and hospice care (end of life care). We can’t say enough wonderful things about the team with Kourageous Kids. These people truly care for kids and their families. Our journey would not have been the same without them.
Mychart I learned quickly that the best place to get information about results and talk directly to doctors was mychart. Use it often! Get one for any hospital you seek treatment at.
Kids Cancer Alliance This organization supports you every step of the way. Offering camp for children affected by cancer, as well as their siblings. They provide family retreats, teen weekenders, and just the most love and support imaginable. Kids get to be kids!
Gilda’s Club of Kentuckiana is a great place to have support for the kids and adults who have been affected by cancer. They have support in so many ways and a great network of families who have been affected by cancer that helps you not feel alone.
Raise Red Cardinal Crew University of Louisville students who connect with patients – Can sign up at the Novack Center in Louisville
Seth’s Squad provides comprehensive support to pediatric cancer patients and their families, addressing needs from diagnosis through survivorship
Camp Golden Wing (NEW) a place for kids to be kids at camp while feeling safe, supportive, and to build lasting friendships
Financial Support
Super Drew’s Crew Local family impacted by Childhood Cancer who gives back to the childhood cancer community in Louisville. I met them and they are so kind.
All In To Win Foundation (Facebook) Great organization that helps children with life-threating illnesses and childhood cancer – they were a great organization to our family
Hogs for a Cause Pediatric Brain Cancer – helps with financial burdens families face with their child battle cancer – great organization that helped us
Molly Johnson Foundation Assist families with special needs – helped our family with travel expenses for our first trip to San Francisco, CA
Be Positive Foundation Provides assistants for families with children with pediatric cancer – another great organization that helped our family and we learned about through social workers
Shirley’s Way Provides parents financial support who are unable to work during treatment – we applied but their funding was low during COVID and was unable to help us
Friends4Michael Provides assistance to families fighting brain tumors
Book for Hope organization that provides vital support for families in Kentucky, Southern Illinois, and Northern Tennessee whose children have been diagnosed with cancer
Alex’s Lemonade Stand Provides support during childhood cancer’s journey for families
NEVER EVER GIVE UP (NEGU/Jessie Rees Foundation) – encourages every kid actively fighting cancer to never give up
Do It For the Love To inspire hope and healing through the power of music by supporting clinical and community-based music therapy, evidence-based research, and providing live music experiences
Front row foundation A mission to help individuals and families who are braving criticial health challenges “live life in the front row”
Live like Bella Childhood Cancer Foundation for research and advocacy while providing financial and emotional support to families whose children battle cancer
Childhood Cancer Awareness License Plate Kids Cancer Alliance has a link to the plates many families have on their cars to spread awareness about Childhood Cancer - link to DMV website
Give Kids the World Non-profit resort for critically ill kids and their families (Kissimmee Florida)
Camp Quality USA Serves children with cancer and their families and is at no cost – a camp for children with cancer
Canvas of Hope art for children fighting cancer (My son received a canvas of his favorite cartoon characters)
Little Wish Foundation Non-profit that grants little wishes to children with cancer – like laptops or toys or needed items, not trips
Make-A-Wish (OH, KY, IN) Grants large wishes like trips for children and their immediate families
Lucy Love Blankets (Facebook) A young lady who makes special blanket for children going through tough medical times (she made a shark blanket for my son)
Brave Gowns gowns to kids who are in the hospital so they can wear a gown that is their own, rather than the hospital ones
Brees Blessings Their mission is to provide opportunities for pediatric patients to future interest in music/art to help cope with diagnosis and treatment
Foundations/Organizations that provide support based on diagnosis/type of childhood cancer
